Become Part of the Australian Sudden Cardiac Arrest Lived Experience (ASCALE) Registry
If you are a survivor of sudden cardiac arrest, a family member, a carer, a bereaved relative, or a responder, your story has power when shared. The AuSCAA is creating a national registry to ensure voices like yours are heard.
The ASCALE Registry is a secure and respectful platform where your experience can help:
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Advocate for Change: Inform government policy and healthcare decisions with real-life stories.
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Raise Awareness: Share your journey through media and campaigns to educate the public about SCA and the importance of CPR and AEDs.
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Support Research: Optionally connect with researchers to help improve care and support for others (subject to ethical approval).
How It Works & Your Protection:
We are committed to treating your story with the utmost dignity and care.
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You Are in Control: You decide how your story is used. We will always seek your explicit permission for each new request.
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Secure and Private: Your information is protected in a secure database, managed in strict accordance with Australian privacy laws.
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Respectful Matching: AuSCAA will always contact you first to explain any opportunity and ensure you are comfortable before connecting you with media, researchers, or policymakers.
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Ongoing Support: We maintain regular check-ins to update your preferences and ensure your continued well-being.